Trump is actively taking away research that could save my vision
Jessica, a full-time PhD candidate at Brandeis University, is living with Usher syndrome type 1F, a rare genetic disease causing progressive deafblindness, especially among Ashkenazi Jews. Her family’s foundation helped launch groundbreaking research at Harvard that is now close to a clinical trial, but funding has been frozen due to federal cuts and political targeting of institutions like Harvard. Jessica fears losing her vision without continued support for rare disease research.